I don’t want to break the law, but I don’t want to bury my eight-year-old child. I am left with no options – my 8 year old daughter Sienna suffers up to 100 epileptic seizures per day, each one life-threatening. I’m writing this out of desperation. Last night I spent the evening watching my little girl gasping for air, unable to breath, another night of thinking I was about to lose her.
We’ve been through 5 specialist doctors unable to help her. Right now she’s on 8 different medications and still experiencing over 100 seizures per day. I’m beside myself. Doctors say they’ve tried everything – the only option left is medicinal cannabis or her the seizures will continue to cause irreparable damage to her brain and organs.
But despite it being legalised last year, red tape is leaving Sienna’s doctors unable to fast track her lifesaving access to medicinal cannabis. She’s left with the only option of joining a long list of kids waiting to get onto clinical trials.
I have had to watch her cognitive ability decline, going from an IQ of 90-100 to a range from 41-52. She has been diagnosed with a severe intellectual disability. Now every seizure is a step closer to death. Right now we are being forced to sit back and watch our baby girl dying in front of us and not a single doctor in NSW can help us. This is cruel and devastating.
We need immediate amnesty to give our little girl a quality of life and a long lasting life. She has dreams too, please help her live to follow them. The Health Minister can’t ignore a dying 8 year old – if he delays access much longer, Sienna will die. Please sign and share to help Sienna. It’s our only hope.
This petition will be delivered to:
NSW Minister for Health